Understanding the Language of Egg Donation Disclosure: Anonymous, Known, Disclosed, Open ID

At Cofertility, we pride ourselves on guiding our members through the journey of egg donation, ensuring a supportive, transparent, and ethical process for all parties involved. One aspect of this process involves helping our members understand the various terms used within the realm of egg donation, and pros and cons of each type of disclosure status. 

Each relationship is unique and depends on both the desires of the donor and family, as well as what’s best for any future donor conceived children. 

This guide is meant to aid you in making informed decisions that align with your personal beliefs, comfort level, and the best interest of any potential donor conceived children.

Let’s dive into the terms:

• Anonymous egg donor: an outdated term used to describe someone whose identity is not shared with the family. In today’s age of social media and genetic testing, we think “anonymous” is a misnomer. 
• Non-anonymous egg donor: an outdated term used to describe when an egg donor and intended parents have each other’s contact information.
• Known egg donor: usually used to describe an egg donor who knows the intended parents, like a family member or friend.
• Unknown egg donor: an egg donor that does not know the intended parents, and vice versa.
• Disclosed donation: the intended parents and egg donor exchange contact information and communicate directly. This does not mean they have an ongoing relationship, just that they have the names of one another. 
• Undisclosed donation: the intended parents and egg donor do not exchange contact information.
• Open ID: the intended parents and egg donor do not exchange contact information, but the egg donor agrees to have her identity disclosed to the child born from her donation once the child reaches a certain age, typically at 18 years.
• Identity-release: another term for open ID.

The problem with “anonymous” egg donation

Traditionally, egg donations were often declared "anonymous," meaning the identities of the egg donor and the intended parents were kept secret from each other. However, in today's world, where genetic testing is widely accessible, we believe no donation can be truly anonymous. We caution against believing anyone who tells you otherwise!

Read more about why we don’t believe in anonymous egg donation.

Known and unknown egg donation

A known donor is someone that you have some level of connection with - be it a friend,  a family member, or an acquaintance. In the early days of donor egg IVF, working with a known donor wasn’t the norm because it was thought that having a relationship with the donor could create confusion between the parties. But now, with more education and research being done on this type of donation, more people are turning to family and friends to help with building a family. 

Yet most egg donation cycles are with "unknown" egg donors, where there is no previous relationship. You can have an “unknown” egg donor that you get to know, or they can remain undisclosed. 

Disclosed and undisclosed egg donation

Disclosed and undisclosed are the terms we prefer to use at Cofertility to describe the two types of disclosure agreements possible.

In a disclosed donation with Cofertility, you and the donor will exchange contact information and can communicate directly. We highly encourage this model as it promotes transparency and aligns with feedback from the donor-conceived community.

In an undisclosed donation, you do not exchange contact information and only communicate via Cofertility. Although we recommend disclosed donations, we respect the individual's choice for undisclosed donation after understanding the potential implications for the donor-conceived child.

Regardless of your donation disclosure status being disclosed or undisclosed, you may choose to meet the donor during the matching period without exchanging contact information. 

The scope and degree of communication in a disclosed donation (both during and post-match) is what both parties make of it and can be outlined in your legal agreement. Communication can range from sharing an annual holiday card to direct, regular communication between the donor and your donor-conceived child. 

Your disclosure status does not necessarily dictate the relationship with the donor. For instance, you may opt for a disclosed donation, where you share contact information, but decide against maintaining regular communication.

Open ID egg donation

For those who choose an undisclosed donation, open ID (sometimes called identity release) is an alternative. This model allows for the donor's identity to be disclosed to the child resulting from the donation once the child reaches a certain age, typically 18 years.

This arrangement respects the potential desire of the donor conceived child to know more about their genetic background and potentially connect with the donor. The open ID agreement is often structured based on the comfort and consent of all parties involved and takes into consideration the best interest of the donor conceived person.

Read more about Open ID

Exploring real-life scenarios: understanding the fluidity of relationships in egg donation

Every single relationship is different, and ultimately up to the intended parents and egg donor to decide. To illustrate how the various terms and models of egg donation work in practical scenarios, let’s explore three real-life examples:

Scenario 1: Unknown, undisclosed donor with Open ID agreement

In this scenario, a family chooses to work with an unknown, undisclosed donor they find through Cofertility. This means that the family and the donor do not exchange contact information, and all communication is handled through Cofertility. This ensures a certain level of privacy and confidentiality while still allowing the exchange of crucial information.

However, the family decides to opt for an Open ID agreement. This arrangement acknowledges the potential curiosity of the donor-conceived child about their genetic roots. Once the child reaches age 18, they will be granted the opportunity to learn about the donor’s identity and, if mutually agreed upon, potentially establish a connection.

Scenario 2: Known, disclosed donor 

In the second scenario, a family chooses to work with a known, disclosed donor who happens to be a relative – in this case, a sister. This situation represents one of the highest levels of openness in egg donation, with full knowledge and likely frequent contact between the donor and the intended parents.

In such a model, there's often an ongoing relationship between the donor and the child. The child grows up knowing about their genetic heritage, understanding that their aunt was the generous person who made their existence possible. 

Scenario 3: Unknown, disclosed donor 

In our third example, a family works with an unknown, disclosed donor. Here, while the donor's identity is initially unknown, the family and the donor exchange contact information via Cofertility and choose to maintain a certain level of contact.

In this case, the family sends the donor a card every year, marking the child's birthday or a holiday, for instance. The donor is not a major part of the family’s day-to-day life, but there's a small bridge of connection that keeps her updated and maintains a cordial relationship. This scenario underlines the flexibility within the disclosed donation model, wherein the extent and nature of communication can be customized to each party's comfort level.

These examples illustrate that egg donation relationships can vary immensely and can be tailored to meet the unique needs, comfort levels, and preferences of all parties involved. At Cofertility, we are committed to facilitating such arrangements that respect and honor the donors, the intended parents, and the donor-conceived children

The power of choice: respecting cultural preferences & unique circumstances

While we advocate for disclosed or open ID donations, and the benefits of being open with children about their donor-conceived origins, we respect the cultural needs and unique circumstances of those who prefer undisclosed donations. At Cofertility, we strive to connect intended parents with research and experts, aiding in informed decision-making, and respecting cultural considerations.

Understanding these terms and the principles behind them can make your journey through egg donation smoother and more transparent. At Cofertility, we are here to guide you, ensuring a process that honors all parties involved, including the donor, the intended parents, and most importantly, the donor conceived children.

Find an amazing egg donor at Cofertility

At Cofertility, our program is unique. After meeting with hundreds of intended parents, egg donors, and donor-conceived people, we decided on an egg donation model that we think best serves everyone involved: egg sharing. 

Here’s how it works: our unique model empowers women to take control of their own reproductive health while giving you the gift of a lifetime. Our donors aren’t doing it for cash – they keep half the eggs retrieved for their own future use, and donate half to your family.

We aim to be the best egg sharing program, providing an experience that honors, respects, and uplifts everyone involved. Here’s what sets us apart:

• Baby guarantee. We truly want to help you bring your baby home, and we will re-match you for free until that happens.
• Donor empowerment. Our model empowers donors to preserve their own fertility, while lifting you up on your own journey. It’s a win-win.
• Diversity: We’re proud about the fact that the donors on our platform are as diverse as the intended parents seeking to match with them. We work with intended parents to understand their own cultural values — including regional nuances — in hopes of finding them the perfect match.
• Human-centered. We didn’t like the status quo in egg donation. So we’re doing things differently, starting with our human-centered matching platform.
• Lifetime support: Historically, other egg donation options have treated egg donor matching as a one-and-done experience. Beyond matching, beyond a pregnancy, beyond a birth…we believe in supporting the donor-conceived family for life. Our resources and education provide intended parents with the guidance they need to raise happy, healthy kids and celebrate their origin stories.

We are obsessed with improving the family-building journey — today or in the future — and are in an endless pursuit to make these experiences more positive. Create a free account to get started today!